Published: 18/11/2022


“Amazing subject matter experts, researchers, medical professionals sharing their discoveries and experience, patients sharing their experience, interactions with other conference attendees, access to papers and research studies, learning who the leaders are in EDS research and treatment – networking.  I am just getting started with my education about EDS and this conference and the Arizona conference have been GOLD!  THANK YOU!”

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

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