Published: 18/11/2022


“I love the Whova app. This is by far the best virtual event app that I have encountered. It makes me truly feel like a participant from afar. These Ehlers-Danlos Society events have greatly alleviated the feeling of being alone in this fight. It took 3 years to get our daughter diagnosed (I know, that is actually fairly short for EDS). Once diagnosed – we still had a long wait for any treatment.  Attending these conferences has helped to bridge the gap and provide hope.”

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

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