Jessica Adelman joined our team as Program Manager in February 2017. She is involved in communications, development, and administration. She joined our staff after a working with the Society as a grant writer.
After receiving her Hypermobile Ehlers-Danlos syndrome diagnosis in 2007, Jessica attended her first Ehlers-Danlos National Foundation conference in 2008 and has been involved in the EDS community ever since. In 2011, she founded EDSOK, a local support, outreach, and advocacy organization for individuals in Oklahoma with Ehlers-Danlos Syndrome. She currently serves as a Co-Leader for the group, organizing monthly meetings and awareness activities as well as maintaining an active online community. In 2015, she spoke in front of the Oklahoma House of Representatives for May Ehlers-Danlos Syndrome Awareness Month.
Jessica received a Bachelor’s Degree from Austin College in 2010 with a major in Public Health Policy and a minor in Biology and Exercise and Sports Science. She has continued her education with independent study in grant writing and nonprofit management. She worked previously as an Independent Grants Consultant for various nonprofit organizations.
Jessica lives in Tulsa, Oklahoma with her partner and their two dogs. In her spare time, she enjoys reading, geocaching, and visiting national parks.