My nephew Jett passed away on July 20, 2025, and was only 23. Jett was diagnosed with vEDS after his kidney and bowel ruptured when he was 18, after years of aliments that baffled the Doctors he had up to that point seen. Then his lungs collapsed and he was in and out of hospital since but the last few years he seemed to be going ok but finally a suspected rupture in his stomach and/or spleen took him from us. Wishing for a cure or treatments ASAP!
(Renee Knight)
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