Job Opportunities

Scroll down to see all the jobs.

Job Opening: Executive Assistant to the President and CEO Job Description

Posted 9/12/19

Location: Work from home
Hours: Full-time 9am-5pm Mon-Fri

  • Support and maintain the vision, mission, priorities, and guiding principles of The Ehlers-Danlos Society.
  • To manage the CEO and senior staff diary, travel and accommodation arrangements, ensuring effective use of the CEO’s time and troubleshooting where necessary.
  • To act as a point of contact with people from both inside and outside the organization where relevant, and respond to general telephone enquiries, dealing with queries and forwarding to the relevant staff. 
  • To manage the CEO’s email account and post, providing a discreet and effective service, identifying urgent correspondence, and responding on behalf of the CEO when required.
  • Will work with our Events Director to facilitate arrangements for meetings involving the CEO and senior staff, including managing room bookings and venues, catering, room preparation, and compiling and disseminating agenda and papers.
  • To take minutes at internal and external meetings, producing and circulating timely and accurate action points and minutes, as appropriate. 
  • To provide general administrative support for the CEO, including word processing, record keeping and filing, and photocopying. 
  • To assist in the monitoring of financial schedules and budgets, including processing the CEO’s expense claims. 
  • Regular international travel where needed and appropriate. 
  • A willingness to support the staff team at events and on campaigns where and when needed. 
  • Organizational and administrative support for the EDS and HSD International Consortium. 
  • Preparing and researching for meetings and putting together agendas.
  • Project management.
  • Liaising with the board, organizing board meeting, taking minutes at board meetings.
  • Perform other related duties as needed.

Requirements

  • Must be highly organized and show a high level of attention to detail.
  • Demonstrated ability to function independently while exercising skill and informed professional judgment.
  • Very strong interpersonal skills and the ability to build relationships with stakeholders, including staff, board members, external partners and donors. 
  • Demonstrated proactive approaches to problem-solving with strong decision-making capability.
  • Excellent written and verbal communication skills: experience in proofreading and editing; ability to communicate and be comfortable with a variety of individuals ranging of all levels from patient to medical executive. Demonstrated success working with diverse populations.
  • Proficiency in the use of MS Office Suite (Outlook, Word, Excel, PowerPoint) and Google Suite (Drive, Doc, Sheets, and Slides).
  • Experience with online conferencing platforms such as Zoom and GoToMeeting.
  • Proficiency in the use of database applications to develop reports. Equivalent education/experience can substitute for all minimum qualifications except when there are legal requirements, such as a license/certification/registration.
  • Event planning and coordination experience.
  • At least two years experience assisting at executive level, preferably non-profit, health or medical related.
  • Demonstrated ability to achieve high performance goals and meet deadlines in a fast paced environment working with both internal and external cohorts in several different time zones.  

This position is full time 9am-5pm Mon-Fri and remotely based and requires the ability to work a flexible schedule to meet deadlines and to travel to, manage and attend events as needed.

Job Opening: Development and Fundraising Coordinator

Posted 9/11/19

Location: Work from home
Hours: Full-time 9am-5pm Mon-Fri

  • Support and maintain the vision, mission, priorities, and guiding principles of The Ehlers-Danlos Society. Understand the strategic direction and purpose of the organization and support the fundraising strategies and business needs.
  • Provide accurate and timely processing of gifts and acknowledgment letters, and tribute notifications.
  • Ensure accuracy of contact information, including donors, sponsors and other Society constituents, processing all updates in Salesforce NPSP.
  • Support the implementation of fundraising and awareness campaigns and events under the direction of the Chief Development Officer, and in collaboration with other staff and volunteer leadership.
  • Works with fundraisers (individuals and groups) on fundraising plan development and implementation.
  • Help manage donor development activities for The Society. Help develop annual plans for assigned activities, including goals, objectives and follow-up.
  • Assist in development and coordination of donor and fundraiser email and direct mail campaigns.
  • Develop and maintain database of grant funding opportunities for all Society programs.
  • Develop and maintain library of grant research administration templates.
  • Support grant workflows: assist to create, maintain and organize electronic grant files, scan documents, draft checklists and supporting documents, maintain central pre- and post-award tracking in Salesforce NPSP.
  • Assist in maintaining records on Society programs grants and awards, projects, groups, and other research-related activities and accomplishments.
  • Participate in professional development opportunities to expand knowledge base for this position.
  • Perform other related duties as needed.

Minimum Requirements

  • Must be highly organized and show a high level of attention to detail.
  • Demonstrated ability to function independently while exercising skill and informed professional judgment.
  • Excellent written and verbal communication skills: experience in proofreading and editing; ability to communicate and be comfortable with a variety of individuals ranging of all levels from patient to medical executive. Demonstrated success working with diverse populations.
  • Proficiency in the use of MS Office Suite (Outlook, Word, Excel, PowerPoint) and Google Suite (Drive, Doc, Sheets, and Slides).
  • Proficiency in the use of database applications to develop reports. Equivalent education/experience can substitute for all minimum qualifications except when there are legal requirements, such as a license/certification/registration.
  • Event planning and coordination experience.
  • Two years experience in non-profit fundraising, communications, marketing, and event planning, preferably health or medical related.
  • This position is full time and remotely based and requires the ability to work a flexible schedule to meet deadlines and to travel to, manage and attend events as needed.

About The Ehlers-Danlos Society

The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. We are a non-profit charitable organization in the US and UK. 

We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD (Hypermobility Spectrum Disorders) population. Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure.  Our strength begins with hope.