Hey there! Are you between 15-18 years old and ready to make a real difference in the world of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)? Join the Teen Council, where your voice matters! 

→What’s the Teen Council All About?

Think of the Teen Council as the place to talk about your ideas, spark change, and meet other amazing teens who are just as passionate as you are. Whether it’s through leading projects, voicing your thoughts, or planning cool community events, here’s where you can shine and grow. We’ll create a space where every Teen Council member feels valued, heard, and supported.

Through monthly meetings, we’ll cover some impactful topics, including:

  • Advocacy and Education
  • Event Planning and Preparation
  • Government Lobbying
  • Public Speaking
  • Fundraising
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  • Make Your Mark

Our mission? To empower YOU. We’re here to amplify your ideas and turn them into action. From advocating on important issues in EDS and HSD to organizing events that bring us all together, you’ll help steer the ship. This is your chance to speak up about what matters to you. Plus, you’ll learn a ton along the way about teamwork, problem-solving, and making an impact. 

  • Here's the Details on Meetings

When? The second Sunday of each month, from July 2024 to May 2025, at 1pm Eastern Time (US and Canada) 

Where? Online via Zoom. We’ll send you all the invites once you’re in! 

→How to Jump In

Ready to apply? Hit up our application form here and join us for a year of making a difference. Hurry though; applications are open from May 13 to June 16, 2024. The Teen Council adventure begins on July 14, 2024! You can join from anywhere in the world. Meetings will be held in English.

Need to check the meeting time in your zone? Check it here


Got something on your mind? Drop a line to Emily Shotbolt. She’s here to help! 

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