Published: 17/12/2018 Tags: In Memoriam

Jon Bielert

I got to know Jon Bielert through the large Facebook family of those with EDS and VEDS. Jon was a kind, gentle, and happy man who adored his three children, NASCAR, fishing & hunting, harvesting his own maple syrup, tending to his vegetable garden, and the great outdoors. Most of all though, Jon was a fierce advocate for VEDS awareness and for better care from medical professionals. VEDS debilitated his body, but not his spirit. I so enjoyed our Facebook chats and I know so many others did, too. In October 2018, Jon’s family decided to remove him from life support after he suffered a series of debilitating and eventually fatal strokes due to VEDS. He is missed by so many. (Jen Ryan, Astoria NY)

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