Jon Rodis

Jon Rodis

(USA)

Jon Rodis is the President of the Massachusetts Chapter of the Marfan Foundation and chair of the chapter’s Physician Awareness Committee for Marfan and Ehlers-Danlos syndromes. In addition, he is the founder and co-head of the Ehlers-Danlos New England/Massachusetts Support Group.  Jon is a National Disability and Medical Advocate for Rare Disorders and serves on the Winthrop Disability Commission. He also serves on the Ambry Genetics Advisory Board and is also a member of the Dysautonomia Support Network’s Board of Directors.