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When I was growing up I was always getting hurt. I remember crying every night because my body was in so much pain.
I had endless dislocations and subluxations, not to mention my PoTS and other issues that EDS has given me.
No amount of pain medication and ice packs could mask my excruciatingly painful days and nights. We went to countless doctors and hospitals trying to figure out why I was so fragile and tiny. When I was 15 I got blood tests done at Nationwide Children’s Hospital, and then I was diagnosed.
All these years of endless pain and crying were diagnosed to be hypermobile Ehlers-Danlos syndrome (hEDS). I used to cheer when I was younger but it got to a point where it hurt too much and I couldn’t do as much.
I took up modeling for David Beckham photography and it boosted my confidence so much, it made me proud to be different. Yes EDS has given me some obstacles but it also gives me a purpose to push through and be more than I ever thought I could be.Tags: hEDS, hypermobile EDS, modeling, POTS
Categorized in: Stories