Rare type patient representative
I am a 35 year old Sound Engineer/Musician. I have Ehlers Danlos Kyphoscoliosis and I was also diagnosed with adult onset Muscular Dystrophy in 2020. I spend my days with my amazing wife Carly who is a nurse and our Basschshund puppy Winston. I am very dedicated to raising awareness of Ehlers Danlos and I hope to help our community in any way I can.