I have had health issues my whole life, although mild, we can now look back and see the ‘signs’ that I wasn’t the typical child. I had joint pain as a child and presumed these were the ‘growing pains’ all my school mates were feeling. I was always very flexible and suffered lots of dislocations. I got tired quickly and had issues with my gut, being hospitalised numerous times for chronic constipation. Despite this I was an active child and spent most my time outdoors.
Virtual Support Groups
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.