Lynn Sanders

Lynn Saunders

Patient Expert (USA)

EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos syndrome. Our mission is to help improve the quality of life for people who have Ehlers-Danlos syndrome, through research, education and support.

Lynn has been married to her husband Dave for the past 30 years and together they have three very supportive, adult children; Jeremy, Justin and Jessica. Jeremy and his sweet wife, Heather have blessed them with their first grandson, Mason James, the joy of their lives!

For Lynn, her family’s love and support have made it possible for her to do the ceaseless hours of volunteer work that requires more time than she is willing to admit.  

She is always available to lend whatever support that is necessary whether it is to individuals, family members or to those organizations that she is affiliated with.

Lynn’s family has seen her thru numerous surgeries and hospitalizations and are extremely understanding of the time elements involving her volunteer work.

In the rare moments that Lynn is not volunteering she manages to find time for her love of photography and GEO caching.