Maggie Buckley, MBA, BCPA

Advocacy Advisor

Maggie Buckley has been a Patient Advocate for more than 25 years while living with the chronic pain condition Ehlers-Danlos syndrome. She currently serves on the board of and volunteers in many roles for The Ehlers-Danlos Society (Conference Speaker, International Consortium Pain Working Group, Comorbidity Coalition Member, and Advisor to the Board). Additionally, she is a member of the PCORI Editorial Review Board. She participates as a member of the Stakeholder Advisory Group on the PCORI-funded EMPOWER pain research project at Stanford University. Previously, she served on the Board of Directors of Ehlers-Danlos National Foundation and American Pain Foundation. She served as the Patient Liaison to the Board of Directors of the Academy of Integrative Pain Management — the only healthcare professional organization with patient representation at that level. Other volunteer experience has been with Northern California Pain Care Initiative, National Fibromyalgia Association, American Cancer Society, Special Olympics, and NORD. She has an undergraduate degree in Social Work and an MBA in accounting with experience in banking and business management. In 2019 she became a Board Certified Patient Advocate. She has testified at local, state and federal policy hearings, spoken at conferences and in the media, written articles, and coached hundreds of people to self-advocate for better care.