May Awareness – Fundraising Ideas

Help spread awareness & raise vital funds by doing something you love!

Organize an activity based on your own hobbies and interests, or host an online fundraiser this May. Big or small, one person or a group — it doesn’t matter, everything helps and there is something for everyone! Use #MyEDSChallenge #MyHSDChallenge on social media and let us know how you’re fundraising and raising awareness this May.

Raise over $60 in May and receive our Limited Edition (exclusive to fundraisers!) 2024 May Awareness t-shirt! Request a fundraising pack today. To claim your t-shirt, please complete this form by June 7, 2024. Please note that shipping is not included.

How to set up a fundraiser

A simple way to fundraise and inspire others with your generosity is to create your own fundraising page! You can create your challenge and let others know why you are taking part, with Network For Good, Tiltify, JustGiving, JustGiving [UK/EU] based, or why not use a Facebook Fundraiser or Instagram Fundraiser to donate in the currency of your choice? 

The Walk ‘N’ Roll challenge is a great way to raise awareness from wherever you are in the world!

Do you have a birthday or other special milestone in May? You can start a fundraiser to ask friends and family for a donation in place of a gift.

Sell raffle tickets where half of the money raised goes to the winner and the other half goes to The Ehlers-Danlos Society. Because the prize amount grows as the number of entries increases, encourage people through social media to recruit their friends and family to get in on the raffle action!

Challenge your friends, family, coworkers, and schoolmates to help you spread awareness by wearing zebra print, The Ehlers-Danlos Society gear, or fancy dress of your choice on scheduled days during Awareness Month. Host an online event and meet virtually with family and friends! Set a donation for people to participate and be out of dress code for the special day. Challenge participants to share with their networks, and have donations count as votes for Best Costume.

Do you like to play video games or cards or board games? Pick your favorite game, whatever platform, and organize an online tournament! Set a donation per entry or game played. If you love a family and friends quiz then why not set up a virtual meeting, create a round of questions per household, and get competitive!

Challenge players to create online fundraising pages and share with their own networks to help spread awareness worldwide!

Are you an artist? Share your talents to spread awareness! Host an online event with your fellow artists and challenge them to create the best awareness art. You can raffle or auction off the creations. Why not host a learning class online, or even schedule a virtual awareness concert, or via Facebook Live Events with a suggested donation for attendees?

Do you like to read or sew or other crafts? Host a virtual Read/Craft-A-Thon. Challenge participants to see who can read the most or complete the most crafts or other projects during Awareness Month. Host a weekly class or tutorial virtually and challenge crafters to create online pages and share with their networks to pledge a donation for every page/chapter/book read or craft/project completed.

Have a great idea for a virtual fundraiser? Contact if you need help and we can work together to find a way!

#myEDSchallenge  #myHSDchallenge

To read in your preferred language, click below:

Online donations will be processed through either Tiltify, JustGiving, or Network For Good platforms and are subject to their respective Terms of Service. Tax receipts may be issued by the Donor Advised Fund indicated in the individual platform’s Terms.

Sign up to The Ehlers-Danlos Society mailing list