How do you manage your symptoms?

Have you had successes managing some of your symptoms or found things that help you day to day?
Maybe you’ve tried ring splints or braces, have found medication that helps, have a movement routine that’s helped manage pain, electrolytes and compression garments for autonomic symptoms – share your stories and photos with us for May awareness month!

"*" indicates required fields

Max. file size: 256 MB.
Are you happy for your story to be shared on our social media channels?*

I hereby authorize The Ehlers-Danlos Society to publish my story, written by me, and or photographs taken by me and of me, for use in The Ehlers-Danlos Society’s print, online, and video-based publications.

I hereby release and hold harmless The Ehlers-Danlos Society from any reasonable expectation of privacy or confidentiality associated with the content specified above.

I further acknowledge that my participation is voluntary and that I will not receive financial compensation of any type associated with the taking or publication of the submitted content in Ehlers-Danlos Society marketing materials or other Ehlers-Danlos Society publications. I acknowledge and agree that publication of said content confers no rights of ownership or royalties whatsoever.

I hereby release The Ehlers-Danlos Society, its contractors, its employees, and any third parties involved in the creation or publication of informational or marketing materials, and from liability for any claims by me or any third party in connection with my participation.

This field is for validation purposes and should be left unchanged.

Sign up to The Ehlers-Danlos Society bi-weekly newsletter