May is Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month! Join The Ehlers-Danlos Society in advancing education and awareness about EDS and HSD by learning from daily educational resources throughout May.
May is EDS and HSD Awareness Month! Learn about EDS and share to help raise awareness 🧡
Today’s Resource:
📖 What is EDS?
May is EDS and HSD Awareness Month! Learn about HSD and share to help raise awareness 🧡
Today’s Resource:
📖 What is HSD?
Watch and learn 🎥
In today’s video, patient advocate Maggie Buckley walks you through the basics of navigating EDS and HSD 🧭
Today’s Resource:
📖 Welcome to the World of EDS: Tips & Tricks for the Newly Diagnosed
✨Tip: Register ahead to attend a virtual support group tomorrow! Let’s Chat: EDS & HSD on Sunday, May 4, at 1:00 pm EST/6:00 pm BST
Did you know The Ehlers-Danlos Society is hosting 10 virtual support groups in May? 💻 Join to connect with others and find support.
Attending support groups is a great way to learn to better live with EDS and HSD. Join our Let’s Chat: Virtual Support groups to connect with other people around the world who are affected by EDS and HSD.
We offer the following groups:
Today’s Resource:
📖 Virtual Support Groups
Management Monday: Skin.
Learn all about the skin features of EDS, including FAQs and video resources on managing skin complications, skin changes, injuries, and healing. ❤️🩹
Today’s Resource:
📖 Skin
Watch and learn 🎥
In today’s video, The Ehlers-Danlos Society’s Community Education Manager, Scarlett Eagle, shares her tips for accessing better support, care, information, and management.
What’s in your EDS & HSD Toolkit? 🧰
Today’s Resource:
📖 Building Your EDS & HSD Toolkit
The Ehlers-Danlos Society’s Healthcare Professionals Directory is a great place to start when looking for providers who have experience with EDS and HSD.
Over 2,000 healthcare professionals have joined our directory. Check to see what types of providers are listed in your area! 👩⚕️🧑⚕️👨⚕️
Are you a healthcare professional? Join our directory here.
Do you have a great provider who should join our directory? Suggest a recommendation here, and we will invite them to join.
Today’s Resource:
📖 Healthcare Professionals Directory
Watch and learn 🎥
May is EDS & HSD Awareness Month! Get tips for spreading awareness and today’s video: EDS/HSD Awareness 101 🧡
How do you spread awareness during May? 📣
Today’s Resource:
📖 EDS/HSD Awareness & Advocacy 101-Tips for Spreading EDS and HSD Awareness
Handouts are a great way to spread awareness!
Check out The Ehlers-Danlos Society’s printables 🖨️ Share one with a friend, family member, or healthcare professional to help them better understand EDS and HSD.
Today’s Resource:
📖 Printables
Looking for reliable information about the genetics and inheritance of EDS and HSD? Look no further! 🧬
Our Genetics and Inheritance page explains important information about the genetics and inheritance of EDS and HSD, including information about genetic testing and answers to FAQs on these topics.
Today’s Resource:
📖Genetics and Inheritance
Watch and learn 🎥
Dive further into the genetics with Dr. Christina Laukitis in today’s video: Genetics for Beginners.
Today’s Resource:
📖 Genetics for Beginners – Christina Laukaitis (27 mins)
Watch and learn 🎥
Dive further into fatigue with Dr. Alan Pocinki in today’s video, Fatigue in EDS: An Overview of Causes, Assessment, and General Principles of Management 😴
Today’s Resource:
📖 Fatigue in EDS: An Overview of Causes, Assessment, and General Principles of Management
Let’s talk about sleep 😴
Management of sleeping issues should focus on their underlying cause(s). Learn about the causes and management of sleeping problems in EDS and HSD💤
Today’s Resource:
📖 Sleep
Did you know there are 13 types of EDS? Select a type of EDS to explore the symptoms associated with each type 👤
Today’s Resource:
📖 Types of EDS
Today is REDS4VEDS Day! Join us by wearing red and sharing information about vascular Ehlers-Danlos syndrome (vEDS) ❤️
Today’s Resources:
📖 What is vEDS?
🔗 vEDS Awareness Video
Did you know The Ehlers-Danlos Society has a directory of support groups and charity organizations that serve the EDS and HSD community?
Local groups are a great way to find resources and providers near you. Check to see if there are any groups listed in your area. 🗺️
Today’s Resource:
📖 Support Group and Charity Directory
Watch and learn 🎥
Learn all about Mast Cell Activation Syndrome (MCAS) with Dr. Anne Maitland in today’s video: More Than ‘Just Allergies.’
Today’s Resource:
📖 Mast Cell Activation Syndrome: More than “Just Allergies” – Anne Maitland
Many people with EDS or HSD also have a type of dysautonomia. Dysautonomia, or autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.
Learn more about the diagnosis and management of dysautonomia.
Today’s Resource:
📖 Management Monday: Dysautonomia
Watch and learn 🎥
Dive further into the dysautonomia with Dr. Alan Hakim in today’s video.
Today’s Resource:
📖 Autonomic Dysfunction – Dr. Alan Hakim
✨ Plus! Register ahead to attend Let’s Chat: EDS & HSD on Tuesday, May 20, at 12 pm EST/5 pm BST
Watch and learn 🎥
Learn tips and tricks for managing autonomic concerns in today’s video with Emily Rich, Ph.D., OTR/L
Today’s Resource:
📖 Tips and Tricks for Managing Autonomic Concerns – Emily Rich
Did you know we have an online community of over 140,000 people on Inspire? 🫂
Join our community to connect with other people from around the world with EDS and HSD 🌍
Today’s Resource:
📖 Inspire
How can a physical therapist help someone with EDS or HSD? 💆💪
Learn about this on our physical therapy page, which includes helpful resources and answers to frequently asked questions, such as:
Today’s Resource:
📖 Physical Therapy
Watch and learn 🎥
Learn more about physical therapy (also called physiotherapy) in today’s video with practical tips from Lies Rombaut.
Today’s Resource:
📖 Physiotherapy: Practical Tips – Lies Rombaut
How can an occupational therapist help someone with EDS or HSD?
Read about this on our occupational therapy page, which includes helpful resources and answers to frequently asked questions, such as:
Today’s Resource:
📖 Occupational Therapy
Do you use braces, splints, or mobility aids to help you live better with EDS or HSD? 🧑🦽
Learn about how different types of supports can be helpful and considerations for using them!
Today’s Resource:
📖 Braces, Splints, and Mobility Aids
Management Monday: Joint Instability 🦴
Learn all about joint instability and how to manage it from Jason Perry! His tips for managing subluxations and dislocations are available both on webpage and video format 💻🎥
Today’s Resource:
📖Subluxation and Dislocation Management – Jason Parry
🔗Video
Watch and learn 🎥
Pain is a common and often debilitating symptom of EDS and HSD. Learn more about managing pain in EDS and HSD in today’s video from Dr. Pradeep Chopra.
Today’s Resource:
📖 Connecting the Dots with EDS in Managing Pain – Dr. Pradeep Chopra
✨ Plus! Register ahead to attend Let’s Chat: EDS & HSD on Tuesday, May 28, at 9 am BST/8 pm AEST
Watch and learn 🎥
Learn Dr. Helen Cohen’s tips for managing joint pain and instability in today’s video: No Brain No Gain 🧠💪
Today’s Resource:
📖 No Brain No Gain – Dr. Helen Cohen
EDS and HSD can affect both physical and mental health.
Access curated lists of mental health resources on The Ehlers-Danlos Society’s website. ❤️
Today’s Resource:
📖 Mental Health Resources
The Ehlers-Danlos Society recently launched a new app! Download today to access information and resources designed to support you.
Today’s Resource:
📖 The Ehlers-Danlos Society App
🔗 iOS
🔗 Android
