The Ehlers-Danlos Society is delighted to announce it has received a $6.7 million funding commitment from the Mike and Sofia Segal Foundation to advance its groundbreaking research initiatives. This transformative pledge—which includes several gifts by the Foundation—is aimed at shaping a future where individuals living with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) can thrive.
In 1978, Mike and Sofia Segal arrived in the U.S. from present-day Ukraine with $120, a young child, and just two suitcases. They created their family foundation to champion causes that have been overlooked and underfunded. The gift to EDS reflects their steadfast commitment to support cutting-edge treatments for, and educate the public about, a range of rare diseases.
This marks a turning point for both The Ehlers-Danlos Society and the EDS and HSD community. The support from the Mike and Sofia Segal Foundation is invaluable in propelling our research towards earlier diagnosis, better understanding of the complications, and better treatment options. The foundations we’ve laid since our inception in 2016 are now paving the way for substantial advancements and positive changes that lie ahead. Together we dazzle!
