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I was diagnosed with EDS after two years of doctor visits and a lifetime of unrelated health problems. Originally, I was searching for the reason why my chronic pain syndrome started after a bad car accident in 2019. My body seemed to get weaker and weaker, my joints seemed to collapse in on themselves, and every day was a battle against the unrelenting nerve and joint pain.
After a year and a half, I was diagnosed with fibromyalgia but it seemed to only fit half of my symptoms. Due to catching mono last year, my health declined even more rapidly and I am now stuck with little muscle mass and debilitating pain. However, when starting with a physical therapist, she tested my hypermobility and it started to fill in the blanks: why I am able to pop my shoulder blades out of the sockets, why I am able to bend my fingers into strange angles, and why I was misdiagnosed with exotropia as a newborn with eyes that wouldn’t stay together and failing vision.
Now that I know what my diagnosis is and can start to tackle it more efficiently, I am dedicated to finding what works so I can get back some of what I lost. I am hopeful and not going to let it get the best of me.Tags: Diagnosis Journey, Ehlers-Danlos syndrome, hypermobility, joint pain
Categorized in: Stories