Published: 03/05/2016 Tags: Ehlers-Danlos in the News

Mother has 3 months to find £150k for lifesaving surgery

A MOTHER with a devastating medical condition has just three months to raise £150,000 for a lifesaving operation abroad, or face complete paralysis.

Jessica Kill, 38, was diagnosed with Ehlers-Danlos Syndrome in June 2014.

EDS is a genetic connective tissue disorder that presents itself in childhood or young adulthood. Sufferers have stretchy skin that tears easily, hypermobile joints and fragile blood vessels with May being national EDS month.

The project manager, who used to live in Redhouse and Cricklade, was plagued with ill-health throughout her 20s, but it was not diagnosed with EDS until 2014.

“I had intense pain which I was told was growing pains, stomach problems diagnosed as IBS, I was told I had deficiencies or was just unlucky,” she said.

Read the complete original article

Join The Ehlers-Danlos Society’s message board

Inspire

The Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration.

This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society mailing list