Published: 03/05/2016 Tags: Ehlers-Danlos in the News

Mother has 3 months to find £150k for lifesaving surgery

A MOTHER with a devastating medical condition has just three months to raise £150,000 for a lifesaving operation abroad, or face complete paralysis.

Jessica Kill, 38, was diagnosed with Ehlers-Danlos Syndrome in June 2014.

EDS is a genetic connective tissue disorder that presents itself in childhood or young adulthood. Sufferers have stretchy skin that tears easily, hypermobile joints and fragile blood vessels with May being national EDS month.

The project manager, who used to live in Redhouse and Cricklade, was plagued with ill-health throughout her 20s, but it was not diagnosed with EDS until 2014.

“I had intense pain which I was told was growing pains, stomach problems diagnosed as IBS, I was told I had deficiencies or was just unlucky,” she said.

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