Health Resources Consultant (Canada)
After a 20 year career as a social researcher in the Canadian government, Nicoleta gave-up full time work as a result of EDS, but continued part-time volunteer work. In 2009 she began volunteering with the Arthritis Society, which promotes active lifestyle as a weapon against chronic pain and pain related mental health issues. For five years she was an Arthritis Self-Management Program leader, which involved teaching courses and workshops on Chronic Pain Management. From 2011-2014, she volunteered as an Exercise Coordinator with a small senior’s residence in Ottawa.
As a Health Resource Consultant for the ILC Chronic Pain and Ehlers Danlos Charitable Foundation (“ILC”), she currently uses her education and experience to provide evidence based research in response to questions about many chronic pain syndromes, including EDS. As a representative of the ILC and EDS in Canada, Nicoleta participates on the Allied Health Working Group for the The International Consortium on EDS and Related Disorders and co-authored “The Evidence-Based Rationale for Physical Therapy Treatment of Children, Adolescents and Adults Diagnosed with Joint Hypermobility Syndrome/Hypermobile Ehlers Danlos Syndrome,” published in the American Journal of Medical Genetics. She uses every opportunity to provide information about EDS to health professionals. She lives with EDS, chronic pain, and has had an improved quality of life due to craniocervical fusion and tethered cord surgery.
Drawing on her lived and volunteer experience, and her Master’s thesis in Human Kinetics (The Effects of Exercise/Physical Activity on Chronic Pain and Pain Related Mental Health Issues), Nicoleta has provided presentations to the ILC – EDS conferences, Canadian Arthritis Society, government and academic audiences, and senior residences on the physical and psychological benefits of exercising, including the above mentioned article.