Published: 03/03/2016 Tags: Ehlers-Danlos in the News

No rare disease committee for Ontario

An attempt to get an all-party committee to develop a rare disease strategy in Ontario failed Thursday as the governing Liberals disagreed with the Opposition on how best to help people with so-called orphan diseases.

The majority Liberals voted against the Progressive Conservative motion to strike a committee to hear from rare disease sufferers and make recommendations on how to help them get diagnosis and treatment.

Health Minister Eric Hoskins recently announced a working group on rare diseases, which he said will help get immediate and tangible results. It will consist of clinical experts, patients and patient advocates — not politicians, he said.

Read the complete original article

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society mailing list