Patient Representative for Mast Cell Disease (USA)
Noni is a registered nurse with a specialty in emergency medicine (retired). As a lifelong resident of the New Jersey Shore and a former US Coast Guard licensed 100-ton ocean operator, Noni was very active in offshore fishing, SCUBA diving, and sailing before health issues curtailed these activities. While no longer being able to tolerate the demanding pace of emergency nursing, she works in human resources as an employee wellness advisor.
Noni joined the Community Coalition as a patient representative for mast cell disease. She has been diagnosed with mast cell activation syndrome (MCAS), along with hypermobile EDS (hEDS), dysautonomia, and alpha tryptasemia.