It has been a month since the Ontario government announced plans to open a new clinic that will help diagnose and treat those with Ehlers-Danlos Syndrome but local families struggling with the disease are not optimistic.
“Nothing’s changed,” said Bruce Smith, father of Caroline Smith, who has EDS, a genetic disorder that affects connective tissues and other systems.
“I’ve got a sick kid, no surgery available here and a lot of debt.”
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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