Published: 03/04/2016 Tags: Ehlers-Danlos in the News

‘Nothing’s changed,’ says father of teen with EDS

It has been a month since the Ontario government announced plans to open a new clinic that will help diagnose and treat those with Ehlers-Danlos Syndrome but local families struggling with the disease are not optimistic.

“Nothing’s changed,” said Bruce Smith, father of Caroline Smith, who has EDS, a genetic disorder that affects connective tissues and other systems.

“I’ve got a sick kid, no surgery available here and a lot of debt.”

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