Owen Moore

Owen Moore
EDS ECHO Programs Coordinator

Owen Moore is the US EDS ECHO Programs Coordinator. Owen started his journey advocating for EDS and HSD after he lost his cousin to vEDS in April of 2019. For his High School senior project, Owen raised awareness and funds for EDS, donating over $3,000 to The EDS Society at the end of his senior year.

Throughout his advocacy experience, he built a strong connection with The Ehlers-Danlos Society and began volunteering in the summer of 2020, working on EDS Project ECHO. He is very excited to be joining The Society team part-time as the US EDS ECHO Programs Coordinator, continuing his journey in honoring his cousin’s life through his awareness efforts.