EDS ECHO Pediatrics

About EDS ECHO Pediatrics

EDS ECHO Pediatrics is a free program for Healthcare Professionals worldwide, across all disciplines who want to improve their ability to care for children and younger people with EDS, HSD, and associated symptoms and conditions.

The programs consist of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length (for EDS ECHO Pediatrics Australia) and 1hr in length (for EDS ECHO Pediatrics North America).

Participants are encouraged to share their cases and questions in the sessions and are guided to further educational materials and support.

There are two EDS ECHO Pediatrics programs:

Dr. Tofts is an accredited rehabilitation physician and paediatrician holding Australian fellowships in both specialties and a Masters in Sports Medicine from The University of New South Wales. Dr. Tofts practices at Kids Rehab the Children’s Hospital at Westmead, Narrabeen Sports Medicine Centre, and Delmar Private Hospital.

Dr. Schwartz is a paediatrician at the Hospital for Sick Children in Toronto, Ontario, Canada, and an assistant professor at the University of Toronto. She was involved in the development and implementation of the first pediatric EDS clinic in Canada, which was launched in 2017.

Constance (Connie) O’Connor is a Pediatric Nurse Practitioner working with the EDS Program in Toronto, Ontario, Canada. Connie’s practice focuses on providing comprehensive patient and family care, program planning and implementation, and the development of educational resources for patients/families and healthcare providers.

Participants who are accepted into the program are asked to attend as much of the program as possible to get the most out of their place.

All participants are encouraged to share their cases and questions in the sessions and are guided to further educational material and support. CME/CEU/CE credits or a certificate of attendance are available to healthcare professionals at no charge. Credits are awarded at 1 per 60 minutes of live session activity.

EDS ECHO Pediatrics Australia – Upcoming Program Schedule:

 Program: EDS ECHO Pediatrics AustraliaClinical Lead: Dr. Louise Tofts
Date & Time: Tuesdays at 7:00pm – 8:30pm (Sydney)
Session 1 – Introduction to Hypermobility in Younger ChildrenOctober 13, 2022
Session 2 – Differential Diagnosis in Younger Children: Rare Ehlers-Danlos Syndromes, Other ConditionsOctober 20, 2022
Session 3 – Gross Motor and Musculoskeletal Issues, Physiotherapy ManagementOctober 27, 2022
Session 4 – Fine Motor and Functional Issues, Occupational Therapy ManagementNovember 3, 2022
Session 5 – Foot and Lower Limb Biomechanics, Podiatric ManagementNovember 10, 2022
Session 6 – Developmental Emotional and Behavioural Issues, Psychological ManagementNovember 17, 2022
Session 7 – Persistent Pain – Multidisciplinary ManagementNovember 24, 2022
Session 8 – Disabling Fatigue – Multidisciplinary ManagementDecember 1, 2022


PLEASE NOTE – Session dates and topics are subject to change.

Participants who are accepted into the program are asked to attend as much of the program as possible to get the most out of their place.

All participants are encouraged to share their cases and questions in the sessions and are guided to further educational material and support. CME/CEU/CE credits or a certificate of attendance are available to healthcare professionals at no charge. Credits are awarded at 1 per 60 minutes of live session activity.

EDS ECHO Pediatrics North America –  Upcoming Program Schedule:

 Program: EDS ECHO Pediatrics North AmericaClinical Lead: Dr. Sarah Scwartz and Ms Constance O’Connor
Date & Time: Tuesdays, 12:00pm – 1:00pm Eastern Time (US & Canada)
 Session 1 – Hypermobility in the Pediatric PopulationApril 5, 2022
Session 2 – Diagnosis of EDS: Clinical Criteria and Genetic TestingApril 12, 2022
 Session 3 – Physiotherapy Approaches to the Management of Hypermobility and EDSApril 19, 2022
 Session 4 – Pain Management in Hypermobility and EDSApril 26, 2022
 Session 5 – Psychological and Social Concerns in EDSMay 3, 2022
 Session 6 – Cardiovascular Concerns and Management in Hypermobility and EDSMay 10, 2022
 Session 7 – GI Issues and Management in Hypermobility and EDSMay 17, 2022
 Session 8 – Neurological Assessment and Management in Hypermobility and EDSMay 24, 2022
 Session 9 – Panel DiscussionMay 31, 2022


PLEASE NOTE – Session dates and topics are subject to change.

Click here to view recordings from the EDS ECHO Paediatrics Australia sessions.

Click here to view recordings from the EDS ECHO Paediatrics North America sessions.

Please note, the program content is only available to those who are participating in the program. You will need the password to access these resources.