EDS ECHO Pediatrics

Project ECHO®
The Ehlers-Danlos Society
EDS ECHO PEDIATRICS

EDS ECHO

‘All Teach, All Learn’

EDS ECHO Pediatrics is a free program for Healthcare Professionals worldwide, across all disciplines who want to improve their ability to care for children and younger people with EDS, HSD, and associated symptoms and conditions.

The programs consist of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform.

Participants are encouraged to share their cases and questions in the sessions and are guided to further educational materials and support.

There are two EDS ECHO Pediatrics programs:

Dr. Tofts is an accredited rehabilitation physician and paediatrician holding Australian fellowships in both specialties and a Masters in Sports Medicine from The University of New South Wales. Dr. Tofts practices at Kids Rehab the Children’s Hospital at Westmead, Narrabeen Sports Medicine Centre, and Delmar Private Hospital.

Dr. Schwartz is a paediatrician at the Hospital for Sick Children in Toronto, Ontario, Canada, and an assistant professor at the University of Toronto. She was involved in the development and implementation of the first pediatric EDS clinic in Canada, which was launched in 2017.

Constance (Connie) O’Connor is a Pediatric Nurse Practitioner working with the EDS Program in Toronto, Ontario, Canada. Connie’s practice focuses on providing comprehensive patient and family care, program planning and implementation, and the development of educational resources for patients/families and healthcare providers.

Participants who are accepted into the program are asked to attend as much of the program as possible to get the most out of their place.

All participants are encouraged to share their cases and questions in the sessions and are guided to further educational material and support. CME/CEU/CE credits or a certificate of attendance are available to healthcare professionals at no charge. Credits are awarded at 1 per 60 minutes of live session activity.

EDS ECHO Pediatrics, Australia – Upcoming Program Schedule:

Applications for next years program will open in Spring 2022.

Participants who are accepted into the program are asked to attend as much of the program as possible to get the most out of their place.

All participants are encouraged to share their cases and questions in the sessions and are guided to further educational material and support. CME/CEU/CE credits or a certificate of attendance are available to healthcare professionals at no charge. Credits are awarded at 1 per 60 minutes of live session activity.

EDS ECHO Pediatrics, North America –  Upcoming Program Schedule:

 Program: EDS ECHO Pediatrics, North America (Module 2)Clinical Lead: Dr. Sarah Scwartz and Ms Connir O’Connor
Date & Time: Tuesdays at 12:00pm – 1:00pm Eastern Time (US & Canada)
 Session 1 – Psychological and Social Concerns in Hypermobility and EDSOctober 5, 2021
Session 2 – Cardiovascular Concerns and Management in Hypermobility and EDSOctober 12, 2021
 Session 3 – GI Issues and Management in Hypermobility and EDSOctober 19, 2021
 Session 4 – Neurological Assessment and Management in Hypermobility and EDSOctober 26, 2021
 Session 5 – Challenges in Patient Care and Complex CasesNovember 2, 2021


PLEASE NOTE – Session dates and topics are subject to change.

Click here to view recordings from the EDS ECHO Paediatrics Australia sessions.

Click here to view recordings from the EDS ECHO Paediatrics North America sessions.

Please note, the program content is only available to those who are participating in the program. You will need the password to access these resources.