Published: 17/04/2015 Tags: Ehlers-Danlos in the News

Parents of girl with rare genetic disease worried by Fairfield Hospital care

A FAMILY whose daughter suffers from a rare genetic disease have expressed serious concerns over a lack of paediatric care provisions at Fairfield Hospital.

Annabelle Griffin suffers from Vascular Ehlers-Danlos Syndrome (VEDS), an incurable condition that means she is at daily risk of her internal organs and arteries spontaneously rupturing.

And after the six-year-old took a fall at their Brandlesholme home recently, parents Sarah and Jared were shocked to learn that there are no paediatric consultants based at Fairfield.

Read more.

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