Patient Expert ECHO

This is a free-to-join program for patients with EDS and HSD.

We know that many of you want to know how to make a difference where you live, by raising awareness of EDS and HSD, and by forging change.

October 2, 2019 will see the commencement of the first Patient Expert ECHO: a focused six-week program to provide you with the tools needed to become a patient expert. The curriculum will cover advocacy, awareness, social media, public speaking, patient engagement, and more, so that you have the skills required to make the change.

We are looking for dedicated people to enroll into our Patient Expert ECHO, who have the time to commit to raising awareness, and to each of the following session dates:

Time: 12 noon EDT

Dates: October 2, October 10, November 6, December 5, December 13, December 16

The program content is currently only presented in English. 

Help us to create a dazzling global army and achieve world-wide awareness—and inevitably, a better quality of life for all who suffer from these conditions.

Our strength begins with hope, our hope begins with you.