About EDS ECHO Pediatrics North America
The EDS ECHO Pediatrics North America program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for children and younger people with EDS, HSD, and associated symptoms and conditions.
The program consists of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform.
The program is composed of nine sessions, each consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr in length and is led by Dr. Sarah Schwartz and Constance O’Connor from Toronto, Canada.
What is Case-Based Learning?
The ECHO model uses case-based learning. Participants can either ask specific questions or they can present de-identified cases from their own practice where there is a concern about any aspect of the diagnosis or management of EDS and HSD or their complications. The session group, with expert specialist support discuss the cases and provide guidance. All are encouraged to participate if they feel able.
Can I Earn CME Credits?
CME/CEU/CE credits are available to healthcare professionals. Credits are awarded at 1 per 60 minutes of live session activity.
Please note that CME/CEU/CE Credits can only be claimed for attendance at live sessions.
An Ehlers-Danlos Society EDS ECHO ‘Certificate of Attendance’ can also be provided upon request.
What if I Can’t Attend a Session?
In order to obtain the most benefit from the program, participants are encouraged to attend as many live sessions as possible. You will be able to catch up on the sessions you miss by watching the password-protected session content, which will be made available to participants through The Ehlers-Danlos Society’s resources page after each session. However, please note that CME Credits can only be claimed for attendance at live sessions.
Program Fees
There is a nominal fee of $35 USD per participant for this program.
How to Register?
The program structure, dates and times, and ticket options are shown below. On completing the ticket option, you will be taken to the registration form.
This is a virtual course using the Zoom platform. It is run from Toronto, Canada, and is open for registration to healthcare professionals worldwide.
(Please visit https://www.worldtimebuddy.com, or your preferred time zone converter to confirm the correct start time in your location)
If you have questions about the registration process please contact us at [email protected]
Program Schedule for 2025:
| Session |
Program: EDS ECHO Pediatrics North America |
Clinical Lead: Dr. Sarah Schwartz and Ms Constance O’Connor |
| 1 | Hypermobility in the Pediatric Population Guest Speakers: Dr. Sarah Schwartz and Ms Constance O’Connor Session Focus: Review and discuss the measurement of hypermobility in children and youth; and learn about the application of the diagnostic framework for pediatric joint hypermobility. |
April 15, 2025 |
| 2 | Diagnosis of EDS: Clinical Criteria and Genetic Testing Guest Speaker: Dr. Roberto Mendoza Session Focus: Review and discuss clinical criteria of EDS subtypes; and learn about associated genetic variants and indications for genetic testing. |
April 22, 2025 |
| 3 | Physiotherapy Approaches and Interventions to the Management of Hypermobility and EDS Guest Speaker: Ms. Brianne Burton Session Focus: Review and discuss approaches to physiotherapy in the hypermobile child or youth; and learn about interventions to address complications of hypermobility. |
April 29, 2025 |
| 4 | Psychological and Social Concerns in Hypermobility and EDS Guest Speaker: Dr. Stella Dentakos Session Focus: Review and discuss common psychosocial concerns in children and youth with hypermobility; and learn about mental health strategies to support children and youth with hypermobility. |
May 6, 2025 |
| 5 | Pain Management in Hypermobility and EDS Guest Speaker: Dr. Naiyi Sun Session Focus: Review and discuss the pathophysiology of pain and different types of pain affecting children and youth with hypermobility; and learn about pain management strategies from a multi-disciplinary approach. |
May 13, 2025 |
| 6 | Cardiovascular Symptoms and Management in Hypermobility and EDS Guest Speaker: Dr. Juan Camilo Guzman Session Focus: Review and discuss cardiovascular concerns associated with hypermobility, including orthostatic intolerance; and learn about approaches to the management of cardiovascular issues associated with hypermobility. |
May 20, 2025 |
| 7 | GI Issues in Hypermobility and EDS Guest Speaker: Dr. Margaret Marcon Session Focus: Review and discuss gastrointestinal concerns commonly associated with hypermobility; and learn about approaches to the management of gastrointestinal issues associated with hypermobility. |
May 27, 2025 |
PLEASE NOTE – Session topics, guest speakers and dates are subject to change.
The program content is currently only presented in English. Automated closed captioning is available during the Zoom sessions.
This is a virtual program, you will be sent a link to join the sessions which are run via the zoom platform.
For all queries regarding EDS ECHO, please email our EDS ECHO Program Coordinator.
Please complete and submit the following information to register for a place on the EDS ECHO Pediatrics North America program.
- After making your ticket(s) selection, click ‘Get Tickets’. You will then be asked to complete a registration form for each ticket you have purchased.
- Registration for this program will close 24 hours prior to its first session or when full.
- Please note – In order to register, you need to be logged in to your website account. Once you are logged in, you will have the ability to add tickets to your basket. Please click here to log in/register for your Ehlers-Danlos Society website account. Once you have logged in, please revisit this page to register.
In support of improving patient care, this activity has been planned and implemented by The Ehlers-Danlos Society and Project ECHO®. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™ per 60 minutes. Clinicians should claim only the credit commensurate with the extent of their participation in the activity.
Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an ineligible company.
None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.
Alan Hakim, MD; Lara Bloom, Prof; Stacey Simmonds; Cassie Forbes; Paul Gardener; Kellen Roach; Sarah Schwartz, MD, Connie O’Connor;
