Phedon was only 22 when she died April 9, 2018. She was active, vibrant, outgoing, spunky, and soft-hearted. She had a sparkle to her and enjoyed dressing up. She loved her cats and animals. She was naturally talented musically, loved singing and cantabile. She had started an online support group for Ehlers-Danlos syndrome and would reach out to others and gave encouragement when needed. She loved her family and always enjoyed getting together for family events and holidays. Her reach and affect has been outstanding, and her family and friends are only now truly noticing her positive and loving reach.