When you leave a lasting legacy by remembering The Ehlers-Danlos Society in your will this means our work can continue – improving the lives of all those suffering from EDS and HSD worldwide. This can also lessen the burden of taxes on your family.
How do I make a bequest?
A bequest is one of the easiest gifts to make. With the help of an advisor, you can include language in your will or trust specifying a gift be made to family, friends or The Ehlers-Danlos Society as part of your estate plan.
What are my options?
A bequest can be made in several ways. You may designate a specific dollar amount or asset, such as property, jewellery, art or a car, for example. A residuary gift is where you set aside a portion of all your remaining estate after funeral expenses, debts and other gifts in the will have been paid. Many people choose to leave this kind of gift because it helps make sure their loved ones are taken care of first.
We suggest you speak to your legal adviser to help you make the decision that’s right for you. Every gift makes a difference to us.
Restricted or Unrestricted giving
Many people choose to leave an unrestricted or general gift. It’s the most helpful because it allows us to use your gift wherever the need is greatest. You can also specify how or where you would like your gift to be used by leaving a restricted gift. If you would prefer to leave a restricted gift, please contact us to discuss the area of our work you would specifically like to support. Please see the suggested wording for both restricted and unrestricted gifts provided.
“I give the sum of $ (or specify percentage of estate) to The Ehlers-Danlos Society [a US non-profit 501(c)(3) corporation, 1732 1st Ave. #20373, New York, NY 10128, USA, EIN 38-2813140, OR a UK Charity Number 1180984, Office 7; 35-37 Ludgate Hill; London, EC4M 7JN; UK] for its general purposes and I declare that the receipt of an authorised officer shall be a full and sufficient discharge to my executors.”
“I give the sum of $ (or specify percentage of estate) to The Ehlers- Danlos Society, [a US non-profit 501(c)(3) corporation, 1732 1st Ave. #20373, New York, NY 10128, USA, EIN 38-2813140, OR a UK Charity Number 1180984, Office 7; 35-37 Ludgate Hill; London, EC4M 7JN; UK] for its general purpose and I express the wish but without creating any binding trust that this legacy be used in the (specify) areas and I declare that the receipt of an authorised officer shall be a full and sufficient discharge to my executors. In the event the purposes of the restriction, in the opinion of the Board of Trustees of the The Ehlers-Danlos Society, can no longer be served, the Board may devote any remaining assets exclusively for charitable purposes that: (a) are within the scope of the charitable purposes of the The Ehlers-Danlos Society and (b) most nearly approximate the original purpose of the gift.”
“The Ehlers- Danlos Society is a beneficiary of my will as I want to help enable them to continue to make a difference to all those with Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders. It was so easy to do. Once I’d decided, I just called my solicitor to get things started.”
David Smith, who has kindly included The Ehlers-Danlos Society in his will
“Being the recipient of a legacy is one of the biggest privileges we can receive – donors’ generosity directly helps to relieve suffering – a remarkable legacy”
Lara Bloom, President and CEO of The Ehlers-Danlos Society
When you’ve had time to reflect and discuss your decision with those close to you, we would be delighted to discuss any questions you may have about leaving a legacy and any specific areas that you might be interested in that The Ehlers-Danlos Society can help with. We can also give advice on the steps you need to take to make a will. Please contact Carissa L. Hocevar
If your estate is liable for inheritance tax, complicated needs in your will – for example: dependent relatives/ friends, property overseas, trust income or ongoing legal issues – we suggest you speak to a solicitor.
Charitable Status of the Ehlers Danlos Society
Supporters from the US and UK can make a tax-deductible gift to The Ehlers-Danlos Society, a registered 501(c)3 non-profit organization in the US, as well as a Registered Charity in the UK. Gifts payable to charity upon the donor’s death such as a do not generate a lifetime income tax deduction for the donor, but they are exempt from estate tax.
The Ehlers-Danlos Society – US
1732 1st Ave. #20373
New York, NY 10128
The Ehlers-Danlos Society – Europe
35-37 Ludgate Hill
London, EC4M 7JN
Charity Number 1180984