Watch a selection of previous EDS ECHO Advocacy and Community Leaders & Educator presentations
At EDS ECHO we have put together for you a selection of speaker presentations from our Advocacy and our Community Leaders and Educators programs. Topics include advocating for yourself and others, fundraising, social media, EDS 101, and starting a support group. We really hope you enjoy watching them and that they give you lots of ideas.
The programs were led by Shani Weber, with presentations from a variety of community, healthcare professional and specialist guest speakers.
The EDS ECHO Advocacy program was designed to create active advocates around the world who were willing to help raise awareness of EDS and HSD.
The EDS ECHO Community Leaders & Educators program explored the ways participants could better teach and support those living with a type of EDS or HSD. The program was for support group and organization leaders as well as others who strived to educate and support our community.
