“I have been blown away with the amount of care and attention I have received and continue to receive.”
Last year, Saffron Taylor was diagnosed with vascular and hypermobility Ehlers-Danlos syndrome – a rare genetic disorder that affects the structure of connective tissue due to a gene mutation.
The 22-year-old has been in Ward 12 at the Heartlands Hospital since February 22 due to an infection, and has nothing but praise for the entire team.
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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