Published: 09/12/2018 Tags: Ehlers-Danlos in the News

Pua Na Pua Art Festival puts the spotlight on artist with EDS on Hawaii Island

By Elizabeth Pitts, originally published on on Dec. 6, 2018.


KAILUA-KONA — For the past three years, the Pua Na Pua Art Festival has created a space in town to showcase disabled Hawaii Island artists and their work, a privilege not all of them have been able to experience in the past.

“Often times, verbally, there’s a disconnect from galleries and to the artist’s ability to communicate,” artist Rose Adare said. “Myself, I don’t have that challenge, but I know that a lot of disabled artists do have that challenge, and it can be terrifying trying to talk to gallery owners or store owners about one’s art, even if one’s art is strong enough to be in a gallery. That communication aspect can be really challenging.”

The Pua Na Pua Art Festival hopes to bridge that divide between disabled artists and potential buyers. A collaboration between Full Life Hawaii, Abled Hawaii Artists and the Donkey Mill Art Center, the festival will be held from 10 a.m. to 4 p.m. Saturday at the Lanihau Shopping Center in Kailua-Kona. Retail booths from both disabled and non-disabled Hawaii Island artists will be set up so they can showcase their work at a public event for all to see.

As a disabled artist, Adare believes the community exposure is important not just for those in attendance, but also so that other disabled artists can find out about the services they need to follow their artistic dreams. Adare said the festival has seen growth every year as more and more artists discover it and participate.

“There’s the whole aspect of is my art good enough?” Adare said. “And I think all artists have that, but especially when you throw in a disability on top of it, it compounds that challenge a bit more. And having something like this, where we can all come together and support one another is absolutely crucial.”

Adare lives with Ehlers-Danlos Syndrome, a disorder that affects a person’s connective tissue in the skin, joints and blood vessel walls and causes constant joint dislocations. Adare found a passion for art when at the age of 7, after failed attempts at sports, gymnastics and other activities that were hindered by Ehlers-Danlos Syndrome. Adare called herself “tremendously hyperactive” at that age, and oil painting was a solution to finding an outlet for her energy while dealing with the disorder.

“My parents, they were just shocked that I would sit down, be quiet and I would focus,” Adare said. “They just threw me into that, let me do it as much as I wanted, and I became really good at it. I just stuck with it and it became my passion.”

Oil painting is Adare’s main medium for art, and is most known for portrait painting, as people are Adare’s muse. She said she always has been in love with painting people and the “diversity of the human spirit.” Her lifelong pursuit of creating art is a way to manage her disorder, where she only finds relief in painting.

“Because with EDS, you have a lot of pain, as you can imagine with your body dislocating all the time, it’s kind of painful,” Adare said. “When I paint, it’s the only time I don’t feel pain. So, I paint a lot to kind of offset that.”

Read the complete original article at West Hawaii Today

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society mailing list