We are pleased to announce that registration is now open for the upcoming EDS ECHO Summit: Mental Health, taking place virtually on Saturday, November 1, 2025.
This important event will explore the complex and vital relationship between mental health and living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The EDS ECHO Summit is open to community members, caregivers, family and friends, healthcare professionals, and advocates from around the world.
Why This EDS ECHO Summit Matters
Mental health is an essential aspect of overall well-being—particularly for individuals navigating the challenges of chronic, complex, and often misunderstood conditions such as EDS and HSD. The EDS ECHO Summit: Mental Health will offer expert-led insights into the emotional and psychological dimensions of living with these conditions, along with practical strategies for daily management.
Participants can expect a dynamic day of presentations, panel discussions, and case studies, featuring clinicians, researchers, and lived-experience voices. Topics include:
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The Mind/Body Connection
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Coping With a Diagnosis
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Intersectionality and Identity
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Neurodivergence and Mental Health
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Practical Tools for Emotional and Mental Well-being
The event will also include opportunities for attendees to engage in Q&A sessions, fostering connection, understanding, and shared learning across the community.
A Truly Global, Inclusive Event
The EDS ECHO Summit will be delivered via Zoom Webinar, making it accessible to participants worldwide. We welcome attendance from all time zones. Registrants will receive the event recordings to watch on-demand the day after the live event.
How to Attend
Registration is now open, and we encourage early sign-ups to secure your spot. Scholarships are available to help ensure accessibility for all.
Register or apply for a scholarship here.
Share Your Voice
Ahead of the event, we invite you to share:
What’s one aspect of mental health and EDS or HSD you believe deserves more attention? Join the conversation on our social media channels.
