Research Grant Applications

The Ehlers-Danlos Society Research Grants

Please note that The Ehlers-Danlos Society offers a maximum of 5% uplift of the value of the grant for indirect costs.

Research Grants

The Ehlers-Danlos Society aspires to offer grants annually, with calls for clinical research proposals early in the year and for basic science later in the year. We will also offer grants of varying value to reflect the different nature of researcher requirements, including microgrants. Examples of our recent funding are available to see here.

Researchers who wish to apply for open access for research outputs can apply here.

The Ehlers- Danlos Society is seeking to fund ten grants of up to $5000 each in the first Microgrant round of 2022. The purpose of this funding is to be able to assist researchers in undertaking small studies and activities such as surveys and collation and analysis of existing data, for example, in the areas of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). It will also be used to determine aspects of all types of Ehlers-Danlos syndromes and hypermobility spectrum disorders that can be further investigated to improve the management and outcomes. The following areas have been prioritized as areas that need attention in research:

  • Genotype and Phenotype – The identification of specific genotype and phenotype groups and subsequent prevalence studies.
  • Time to Diagnosis Reduction – Exploration of reducing the time it takes an individual to receive a diagnosis and earlier counseling.
  • Centers and Networks of Excellence – The availability of proper centers that have the appropriate resources to assist patients, as well as proper pathways to follow.
  • Therapies and Management – Elucidation of mechanisms and therapies that can target these mechanisms of symptoms such as pain and fatigue, as well as the investigation of the mechanism behind comorbidities.

Funding Amount: $50,000

This grant will adhere to the following timelines:

  • Research Funding Announcement: August 19, 2022
  • Full Application Deadline Extended to September 23, 2022
  • Notification to Applicants: October 26-28, 2022

This round is now closed for submissions.

The Ehlers-Danlos Society is pleased to announce a round of grants for research into the rarer types of the Ehlers-Danlos syndromes (EDS) from an available fund of $200K. To be eligible for funding, research must be looking into one or more of the following types of EDS: Arthrochalasia EDS, Brittle Cornea Syndrome, Cardiac-Valvular EDS, Classic-Like EDS, Dermatosparaxis EDS, Kyphoscoliotic EDS, Musculocontractural EDS, Myopathic EDS, Peridontal EDS, Spondylodysplastic EDS, and Vascular EDS.

The purpose of this funding is to determine aspects of the rarer types that can be further investigated to improve the management and outcomes. The following areas have been prioritized as areas that need attention in research:

  • Genotype and Phenotype – The identification of specific genotype and phenotype groups and subsequent prevalence studies.
  • Time to Diagnosis Reduction – Exploration of reducing the time it takes an individual to receive a diagnosis and earlier counseling.
  • Centers and Networks of Excellence – The availability of proper centers that have the appropriate resources to assist patients, as well as proper pathways to follow.
  • Therapies and Management – Elucidation of mechanisms and therapies that can target these mechanisms of symptoms such as pain and fatigue, as well as the investigation of the mechanism behind comorbidities.

This grant round will adhere to the following timeline:

  • Announcement Date – July 1, 2022
  • Letter of Intent Submission Deadline – July 30, 2022
  • Full Application Deadline – August 15, 2022
  • Notification to Applicants – October 7, 2022

This round is now closed for submissions.

APPLICATIONS NOW CLOSED

The Ehlers-Danlos Society is pleased to announce a round of grants for research into the molecular basis of disease in hEDS/HSD from an available fund of $1 million.

The grant amount may be up to a maximum of $250,000 for studies that may take six months to three years to complete, on topics such as:
• Gene and mutation discovery
• Studies in animals or in vitro systems
• Genomic, transcriptomic, proteomic, or metabolic studies
• Pathophysiological mechanisms in hEDS/HSD
• Diagnostic markers

For studies requiring serum or plasma, the EDS Society Biobank anticipates having serum and plasma samples within the next few months from several hundred individuals meeting the 2017 criteria for hEDS.

  • Announcement Date – January 15, 2021
  • Submission Deadline – April 9, 2021
  • Award Notification – July 2, 2021

This round is now closed for submissions.

APPLICATIONS NOW CLOSED

The Basic Research round will award grants ranging between $50,000 to $150,000 from a total fund of $400,000. the grants aim to support studies likely to require 1-3 years to complete and to cover the costs for researchers and study equipment. All research topics aiming to improve our understanding of pathophysiological mechanisms underlying Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) will be considered, including e.g. :

  • Gene and mutation discovery
  • Basic and translational research using different animal and cellular models
  • Genomic, transcriptomic, proteomic, and metabolic studies
  • Pathophysiological mechanisms of EDS

Basic Science Grants Timeline:

  • Announcement Date – 18 January, 2021
  • Submission Deadline – 28 February, 2021

This round is now closed for submissions. 

In addition to the earlier Spring Microgrants, The Society will be awarding up to an additional nine grants of up to $5000 each in the next microgrant round. Typically, though not exclusively, these awards are given to assist researchers undertaking small study hypothesis testing, activities such as surveys, or collation and analysis of existing data, for example, in the areas of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

Fall Microgrants Round

Announcement date – November 30, 2020

Deadline for submissions – February 28, 2021

This round is now closed for submissions. 

2020 Clinical Research Major Grants


The Clinical Research round will award grants ranging between $50,000 to $150,000 from a total fund of $400,000. These grants aim to support studies likely to require 1-3 years to complete and to cover the costs for researchers and study equipment. All areas of health and social care, and education applicable to our research priorities that have a direct impact on care in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) will be considered.

Clinical Research Grants Timeline:

  • Announcement Date – 9 March, 2020
  • Submission Deadline – 30 June, 2020
  • Award Notification – 16 October, 2020

This round is now closed for submissions. 

The Society aims to award around nine grants of up to $5000 each in the Spring Microgrant Round. Applicants should review the information on the grant announcement but typically, though not exclusively, these awards are given to assist researchers undertaking small study hypothesis testing, activities such as surveys, or collation and analysis of existing data, for example, in the areas of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

Spring Microgrant Round

Announcement date – February 5, 2020

Deadline for submissions – June 30, 2020

This round is now closed for submissions.