2022 Rarer Types $200k Grant Application

The Ehlers- Danlos Society is looking to fund multiple studies exploring the rarer types of Ehlers-Danlos syndromes. The purpose of this funding is to determine aspects of the rarer types that can be further investigated to improve the management and outcomes.

Goals of Research Currently of Interest and Encouragement
We have prioritized certain areas of research that aim to benefit the community and their families. These are the areas that we believe need attention:

  • Genotype and Phenotype – The identification of specific genotype and phenotype groups and subsequent prevalence studies.
  • Time to Diagnosis Reduction – Exploration of reducing the time it takes an individual to receive a diagnosis and earlier counseling.
  • Centers and Networks of Excellence – The availability of proper centers that have the appropriate resources to assist patients, as well as proper pathways to follow. 
  • Therapies and Management – Elucidation of mechanisms and therapies that can target these mechanisms of symptoms such as pain and fatigue, as well as the investigation of the mechanism behind comorbidities.

Rarer Types Grant Timeline

  • Announcement Date – July 1, 2022
  • Letter of Intent Submission Deadline – July 30, 2022
  • Full Application Deadline – August 15, 2022
  • Committee Review Dates – August 16 – September 2, 2022
  • Notification to Applicants – September 14 – September 15, 2022

We look forward to receiving your application. Please note, you can save and continue this form later by clicking the “Save and Continue” link at the bottom of the page.

1Principal Investigator & Sub-Investigator Information
2Institution Information
3Grant Request Information

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