Research Surveys

Experiences of childbearing and maternity care among women with hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

Researchers at Coventry University are conducting this research and Dr. Gemma Pearce is the Principal Investigator.

For more information and to participate: http://bit.ly/EDSMothersSurvey


Maternity staff’s experiences and understanding of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder

Researchers at Coventry University are conducting this research and Dr. Gemma Pearce is the Principal Investigator.

For more information and to participate: http://bit.ly/EDSMaternityStaffSurvey


The Relationship Between Attitudes and Quality of Life in People with Chronic Pain

Clarkson University, Leslie Russek

Researchers at Clarkson University are seeking people with chronic pain (pain on most days for more than 3 months) to participate in research looking at whether attitudes about chronic pain affect quality of life and function in people with chronic pain. Participants will answer about 30 minutes of questions online via SurveyMonkey. Your answers will all be anonymous. The questionnaires utilized in this study pose no more risk than questionnaires typically completed for healthcare providers. You must be >18 years old, able to read and respond in English, and have chronic pain. This project is approved by the Clarkson University IRB: proposal 19-43, approved until 3/9/20.

https://www.surveymonkey.com/r/M63GHXH