The Ehlers-Danlos Society Research Inner Circle

The Ehlers-Danlos Society Research Inner Circle is a group of passionate and devoted supporters that have an interest in advancing research in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). This unique initiative aims to provide a direct pathway for researchers to engage with donors keen on supporting diverse research efforts related to EDS and HSD. 

Through quarterly webinars, researchers and their teams will have the opportunity to present their research proposals directly to donors, who will have the opportunity to invest in and impact future discoveries. 

Process for Researchers 

Researchers seeking funding for their studies begin by submitting a Letter of Intent. Following this, we will guide you through the application process and equip you for a webinar presentation where you can directly showcase your research to attending stakeholders. Should your study resonate with these stakeholders and align with their funding interests, we will notify you promptly. 

We highly value all applicants and researchers’ privacy and intellectual property rights. Please be assured that your submitted research materials will be treated with the utmost confidentiality and respect for your intellectual property rights, and all involved will have signed Non-Disclosure Agreements.   

Please take note of the scheduled rounds. There will be four opportunities annually where you will have the chance to seek funding for your research. 

Timeline for Researchers 

Quarter 1 Schedule:

Open Letter of Intent: February 1, 2024
Closing Letter of Intent: March 11, 2024
Internal Review Period: March 12 – March 19th, 2024
Webinar Preparation: March 20th – April 5, 2024
Webinar Date: April 6, 2024

Quarter 2 Schedule:

Open Letter of Intent: April 8, 2024
Closing Letter of Intent: May 13, 2024
Internal Review Period: May 14 – May 31, 2024
Webinar Preparation: June 1 – June 24, 2024
Webinar Date: June 29, 2024

Quarter 3 Schedule:

Open Letter of Intent: July 8, 2024
Closing Letter of Intent: August 12, 2024
Internal Review Period: August 13 – August 31, 2024
Webinar Preparation: September 11 – September 26, 2024
Webinar Date: September 28, 2024

Quarter 4 Schedule:

Open Letter of Intent: October 12, 2024
Closing Letter of Intent: November 16, 2024
Internal Review Period: November 17 – November 30, 2024
Webinar Preparation: December 11 – December 28, 2024
Webinar Date: December 14, 2024

Acknowledgement of Privacy

We acknowledge the receipt of your application for the research study submitted to The Ehlers-Danlos Society for review and consideration. 

At the Ehlers-Danlos Society, we highly value all applicants and researchers’ privacy and intellectual property rights. Please be assured that your submitted research materials, including but not limited to proposals, manuscripts, data, and associated documentation, will be treated with the utmost confidentiality and respect for your intellectual property rights. 

We hereby affirm the following commitments: 

  1. Confidentiality: All information and materials provided in your research application will be kept confidential and accessed only by authorized personnel involved in the review process.
  1. Intellectual Property Rights: You retain full ownership and rights to your submitted research work. The Ehlers-Danlos Society does not claim any ownership or rights over your intellectual property and will not use, reproduce, or distribute your work without your explicit consent.
  1. Non-Disclosure: Your research content will not be disclosed to any third party without your prior written consent, except where required by law. We will also request that all stakeholders and donors sign a Non-Disclosure Agreement to maintain confidentiality throughout the process.

Please note that this acknowledgment letter is to serve as a formal assurance of our commitment to safeguarding your privacy and respecting your rights to your submitted research. 

If you have any concerns or require further clarification regarding our privacy policies or the treatment of your submitted materials, please do not hesitate to contact us at grants@ehlers-danlos.com  

How to Apply:

If you wish to submit a Letter of Intent, please reveiw the template document here. Once you have completed your Letter of Intent, please submit it on the form below for consideration:

We are excited about the potential of this program to bridge the gap between research and necessary funding. Join us in advancing the understanding and treatment of EDS and HSD through this collaborative endeavor. If you have any questions, please direct them to grants@ehlers-danlos.com  

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