Process for Researchers 

Researchers seeking funding for their studies begin by submitting a Letter of Intent. Following this, we will guide you through the application process and equip you for a webinar presentation where you can directly showcase your research to attending stakeholders. Should your study resonate with these stakeholders and align with their funding interests, we will notify you promptly. Researchers are encouraged to apply for both small and large projects. There is no minimum or maximum funding limit.

We highly value all applicants and researchers’ privacy and intellectual property rights. Please be assured that your submitted research materials will be treated with the utmost confidentiality and respect for your intellectual property rights, and all involved will have signed Non-Disclosure Agreements.   

Please take note of the scheduled rounds. There will be four opportunities annually where you will have the chance to seek funding for your research. 

Please note that only studies or projects conducted by charitable, university, or healthcare organizations are allowed to participate in this program. If you have any questions about eligibility, please email [email protected].

Acknowledgement of Privacy

We acknowledge the receipt of your application for the research study submitted to The Ehlers-Danlos Society for review and consideration. 

At the Ehlers-Danlos Society, we highly value all applicants and researchers’ privacy and intellectual property rights. Please be assured that your submitted research materials, including but not limited to proposals, manuscripts, data, and associated documentation, will be treated with the utmost confidentiality and respect for your intellectual property rights. 

We hereby affirm the following commitments: 

1. Confidentiality: All information and materials provided in your research application will be kept confidential and accessed only by authorized personnel involved in the review process.

2. Intellectual Property Rights: You retain full ownership and rights to your submitted research work. The Ehlers-Danlos Society does not claim any ownership or rights over your intellectual property and will not use, reproduce, or distribute your work without your explicit consent.

3. Non-Disclosure: Your research content will not be disclosed to any third party without your prior written consent, except where required by law. We will also request that all stakeholders and donors sign a Non-Disclosure Agreement to maintain confidentiality throughout the process.

Please note that this acknowledgment letter is to serve as a formal assurance of our commitment to safeguarding your privacy and respecting your rights to your submitted research. 

If you have any concerns or require further clarification regarding our privacy policies or the treatment of your submitted materials, please do not hesitate to contact us at [email protected]