EDS ECHO EDS & HSD Community

EDS ECHO Advocacy and Community Leaders & Educators

Recordings and Resources

At EDS ECHO we have put together for you a selection of speaker presentations from our Advocacy and our Community Leaders and Educators programs.

Presentations Include:

EDS ECHO Advocacy

  1. How to Advocate for Yourself and Others
  2. Public Speaking
  3. How to present information on EDS and HSD 101
  4. Fundraising
  5. Political Awareness & Lobbying
  6. Understanding the Research Process
  7. Social Media

EDS ECHO Community Leaders & Educators

  1. Teaching Basics
  2. Effective Doctor Appointments
  3. Starting and Running a Support Group
  4. Support and Education on Social Media
  5. Conflict Resolution
  6. How to Find Accurate, Reputable Information
  7. How to Answer Questions and Be Supportive

Materials are made available to participants as part of this EDS ECHO program/course.

We kindly ask that you do not share the link and password to these resources, and please do not share any of the materials at any time.