EDS ECHO Genetics & Genomics

EDS ECHO Genetics & Genomics

Recordings and Resources

Rewatch the session recordings below, and find accompanying PDF presentations in each session.


Program: EDS ECHO Genetics & Genomics
(Program Code: GG)
Clinical Leads: Dr. Irman Forghani & Dr. Clair Francomano
Date & Time: 12:00pm-1:00pm Eastern Time (US & Canada) /
5:00pm-6:00pm London (UK Time)
Session 1 Friday, July 12, 2024
Session 2 Friday, October 18, 2024
Session 3 Friday, February 21, 2025
Session 4 Friday, May 16, 2025
Session 5 Friday, July 25, 2025
Session 6 Friday, October 17, 2025

PLEASE NOTE – Session dates are subject to change.

The program content is currently only presented in English. Automated closed captioning is available during the Zoom sessions. This is a virtual program, you will be sent a link to join the sessions which are run via the zoom platform.



As a key part of this program and the Project ECHO model, we invite participants to submit their case studies in advance of each session.

The ECHO model uses case-based learning. Participants can either ask specific questions or they can present de- identified cases from their own practice where there is a concern about any aspect of the diagnosis or management of EDS and HSD or their complications. The session group, with expert specialist support discuss the cases and provide guidance. All are encouraged to participate if they feel able.

If you would like to submit a Case Study, please click HERE.


If you have any questions or need further clarification on any aspect of the program please contact us and our EDS ECHO Coordinators will be happy to assist.

Session Recordings & Resources:

  • Materials are made available to participants as part of this EDS ECHO program/course. We kindly ask that you do not share the link and password to these resources, and please do not share any of the materials at any time.
  • Please allow up to 3 days after a session for the content to be uploaded.