Rarer Types of Ehlers-Danlos syndromes

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We are proudly working to provide global learning conferences on the multisystemic nature of the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and comorbid conditions.

Our aim is to reduce the time to diagnosis, ensure validation and recognition for the lived experiences of those affected by EDS and HSD, and for all to be able to access effective treatment and care, worldwide.

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