Tags: Community VoicesVideos

Community Voices: Ellie – We need to be beleived

Ellie is 17, from the United Kingdom, and has hypermobile EDS (hEDS). Ellie has a diagnosis of delayed gastric emptying, is fed by a jejunal tube, and has a PEG tube in situ j. Ellie has also been diagnosed with GERD, POTS/Dysautonomia, MCAS, and visceral hypersensitivity.

Ellie joins us with her mum Caroline to share their experiences with misdiagnosis, delays in diagnosis, and accusations of fabricated induced illness (FII).

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