Ellie is 17, from the United Kingdom, and has hypermobile EDS (hEDS). Ellie has a diagnosis of delayed gastric emptying, is fed by a jejunal tube, and has a PEG tube in situ j. Ellie has also been diagnosed with GERD, POTS/Dysautonomia, MCAS, and visceral hypersensitivity.
Ellie joins us with her mum Caroline to share their experiences with misdiagnosis, delays in diagnosis, and accusations of fabricated induced illness (FII).
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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