Sandy first became involved with The Ehlers-Danlos Society (then EDNF) in 2009. When her daughter was diagnosed about a year earlier, her research for credible information about Ehlers-Danlos led her to the organization. She volunteered to run the 2010 Learning Conference, and soon after, joined the board.
She is honored to serve the organization during such an important and exciting time. With the opening of the Center for Clinical Care and Research, the 2016 International Symposium, and becoming an international charity, it has been a very busy few years. The work we are doing now will set the stage for real progress in researching and better managing this disorder, improving the lives of those in our community.