Saskia was born with club feet and several other things that the doctors didn’t know. At the age of four she dislocated her hip; that’s how we found out she had EDS. Over the years she dislocated her shoulder, etc., many times. They told us not to worry because you can grow old like that. She was such a bubbly person, always smiling, and lived her life to the fullest! On the 27th of February 2016, she suddenly died of an aneurysm. After her death we heard she had vEDS. We still miss her every day.
(Heleen Jansse)
