Scarlett has wanted to help the EDS/HSD community since being diagnosed with Hypermobile EDS in 2012. She is very passionate about advocacy and is excited to serve as Community Engagement Coordinator at the Ehlers-Danlos Society.
Scarlett graduated summa cum laude with honors from Iowa State University with a bachelor’s degree in genetics and a minor in statistics. While in school, Scarlett planned and hosted Iowa State University’s first Rare Disease Day and founded a Rare Disease Awareness Club in affiliation with the National Organization for Rare Disorders.
She also has over three years of research experience and developed a research project examining the role of microRNAs in the development of Hypermobile EDS using fruit flies as a model organism.
In her free time, Scarlett enjoys cooking, burning candles, and playing with her cats Watson and Stella.