Scarlett Eagle

Community Content Coordinator

Scarlett has been dedicated to serving the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) community since being diagnosed with hypermobile EDS (hEDS) in 2012. She is very passionate about education and enjoys the challenge of communicating science in a simple way that is accessible to everyone.

Scarlett graduated summa cum laude with honors from Iowa State University with a bachelor’s degree in genetics and a minor in statistics. While in school, she planned and hosted Iowa State University’s first three Rare Disease Day events and founded a Rare Disease Awareness Club in affiliation with the National Organization for Rare Disorders. Scarlett also worked in three different research labs and developed a research project examining the role of microRNAs in the development of hEDS using fruit flies as a model organism.

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