The Ehlers-Danlos Society
Shane Robinson served as the executive director of the Ehlers-Danlos National Foundation (EDNF) since 2011. He is now the USA executive director of the Ehlers-Danlos Society.
Prior to his time with EDNF, Robinson worked for a variety of nonprofits around the globe in the health, education, and environment sectors. He was a Peace Corps volunteer in Zambia from 2002 to 2005.
In the fall of 2010 Robinson was elected to a four-year term in the Maryland House of Delegates representing Maryland’s 39th legislative district; he was re-elected in 2014.
Robinson earned undergraduate degrees in biology and Spanish at the University of Nevada, Reno, and a graduate degree in sustainable development at the SIT Graduate Institute in Brattleboro, Vermont.
On weekends Robinson teaches scuba at the Atlantic Edge Dive Center, and ski patrols at Whitetail ski resort. He also serves as president of Amigos de Iracambi, US, which supports the Iracambi Atlantic Rainforest Research and Conservation Center located in Minas Gerais, Brazil, and he sits on the boards of the Chesapeake Bay Trust and the University of Maryland Dental School. Shane enjoys running, skiing and travel.
Robinson resides in Montgomery Village, Maryland with his wife, Mary, and his children, Gordon and Paige.