Sophie Castle-Clarke was diagnosed with classical Ehlers-Danlos syndrome at the age of two. A period of ill health in 2016 re-ignited her desire to support the Ehlers-Danlos community in the best way she could. Sophie has worked in health policy research for the last 8 years, and is excited to ensure that The Ehlers-Danlos Society benefits from being sighted on international health policy and commissioning developments.
Sophie is currently employed as a Senior Fellow in Health Policy at the Nuffield Trust, a leading, independent health policy think tank. She gained her M.Phil in International Relations from the University of Cambridge in 2011.