Clara Lemarr’s parents chalked the moodiness up to adolescence.
And when she began spending more time in her room—well, that’s what teenagers do.
But when Clara’s arm turned cold during a violin lesson, her parents—and her instructor—knew something was wrong.
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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