Meet Our Team

C-Suite

Lara

Lara Bloom
President and CEO
London, UK

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Alan Hakim, MA, FRCP
Chief Medical and Scientific Officer
London, UK

Sinead

Sinead Waugh
Chief Operations Officer
Essex, UK

Eric

Eric Alley
Chief Financial Officer
Oklahoma, USA

Operations Department

Sam

Sam Lynch
Executive Assistant to the CEO
Midlothian, UK

Rosie

Rosie Harper
People Operations Manager
Hertfordshire, UK

Sarah Hamilton is the Accessibility Coordinator at The Ehlers-Danlos Society, having worked in the charity sector since graduating in 2011, Sarah is passionate about inclusivity, diversity, and accessibility in all aspects of work and life.

Sarah has previously worked at EDS UK for nine years, as well as having a background in Autism and Brain Injury Rehabilitation, gaining a degree in Psychology at UWE and a PG Dip at Birmingham University.

Sarah enjoys long walks with her family and elderly dog as well as reading and visiting historical places.

Sarah Hamilton
Accessibility Coordinator
Oxford, UK

website_staff_Tim

Tim Abbot-Cole
Platform Operations Coordinator
Hampshire, UK

Development Department

Danielle

Danielle Hohlier
Development Director
Texas, USA

Briony

Briony Corbett
Sponsorships Coordinator
London, UK

Research Department

Amelia

Amelia Conley
Research Data & Access Director
Minnesota, USA

Oumaima

Oumaima Nehaili
Research Programs Director
Ohio, USA

Beth_2

Beth Pillow-Edwards
Biobank Manager
Cheshire, UK

Anthony

Anthony Barrios
Registry Coordinator
California, USA

Emma

Emma Wimbury
hEDS/HSD Criteria Study Coordinator
Manchester, UK

Sarah2

Sarah Birhanzl
Research Program Coordinator
USA

Educational Programs Department

Faye

Faye Moran
Events Manager
North Yorkshire, UK

Scarlett

Scarlett Eagle
Community Education Manager
Iowa, USA

Paul

Paul Gardener
Senior EDS ECHO Coordinator
London, UK

Kellen

Kellen Roach
EDS ECHO Program Coordinator
Ohio, USA

Najat

Nagat Abduljalil 
Events Coordinator
Norfolk, UK

Grace

Grace Kully
Outreach Coordinator
Belfast, UK

Ely

Ely Jewett
Community Education Coordinator
Reading, UK

Janae

Janae Davis
 EDS ECHO Program Coordinator
North Carolina, USA

Communications Department

Erin

Erin Simons (Consultant)
Senior Marketing Director
North Yorkshire, UK

Rachel

Rachel Boon
Creative and Digital Communication Director
Northumberland, UK

Charli

Charli Peck
Website, App & IT Manager
Lincolnshire, UK

Jack

Jack Annable
Senior Graphic Designer
Derbyshire, UK

Barney

Barney Pedryc
Graphic & Motion Designer
Yorkshire, UK

Mark

Mark Martino
Editor
Texas, USA

Joseph

Joseph Malam 
Website & App Developer
North East, UK

Bronte

Bronte Walker
Website, IT and App Coordinator
Manchester, UK

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