Tell Us Your Ehlers-Danlos Story

What is unique about your Ehlers-Danlos story? What would you like others to know about your life with an Ehlers-Danlos syndrome or hypermobility spectrum disorder? We want to share your story!

  • Stories should be around 800 words.
  • Each story should focus on one aspect of your EDS or HSD journey.
  • Ehlers-Danlos Society staff or volunteers may contact you to discuss your story further.
  • Submissions are accepted only on condition that publication of that material is not under restrictions on its publication. We cannot accept any submissions that are already copyrighted.
  • The Ehlers-Danlos Society reserves all and final editorial privileges, including the right to choose not to use submissions which may be edited at the discretion of the editorial staff.
  • Please submit at least one photo to accompany your story.

Have a question? Ask us by clicking here.

Thank you for your participation!