Tell Us Your Ehlers-Danlos Story

What is unique about your Ehlers-Danlos story? What would you like others to know about your life with an Ehlers-Danlos syndrome or Hypermobility spectrum disorder? We want to share your story!

  • Stories should be around 800 words.
  • Each story should focus on one aspect of your EDS or HSD journey.
  • Ehlers-Danlos Society staff or volunteers may contact you to discuss your story further.
  • Submissions are accepted only on condition that publication of that material is not under restrictions on its publication. We cannot accept any submissions that are already copyrighted.
  • The Ehlers-Danlos Society reserves all and final editorial privileges, including the right to choose not to use submissions which may be edited at the discretion of the editorial staff.
  • Please submit at least one photo to accompany your story.

Submit questions here or contact Jessica Adelman

Thank you for your participation!

  • Optional.
  • Please include up to 4 photos which may be used to accompany the story.Please submit the highest resolution photos available.
  • I hereby authorize The Ehlers-Danlos Society to publish my story, written by me, and or photographs taken by me and of me, for use in The Ehlers-Danlos Society’s print, online, and video-based publications.

    I hereby release and hold harmless The Ehlers-Danlos Society from any reasonable expectation of privacy or confidentiality associated with the content specified above.

    I further acknowledge that my participation is voluntary and that I will not receive financial compensation of any type associated with the taking or publication of the submitted content in Ehlers-Danlos Society marketing materials or other Ehlers-Danlos Society publications. I acknowledge and agree that publication of said content confers no rights of ownership or royalties whatsoever.

    I hereby release The Ehlers-Danlos Society, its contractors, its employees, and any third parties involved in the creation or publication of informational or marketing materials, and from liability for any claims by me or any third party in connection with my participation.